ACKNOWLEDGEMENTS
The CPF is grateful to the following medical professionals for their efforts in peer-reviewing the CPF's educational literature:- Harold R. Collard, M.D. - University of California, San Francisco (San Francisco, CA)
- Marilyn Glassberg, M.D. - University of Miami/Jackson Memorial Medical Center (Miami, FL)
- Jeffrey Golden, M.D. - University of California, San Francisco (San Francisco, CA)
- Susan Spencer Jacobs, RN, MS - Stanford University Medical Center (Palo Alto, CA)
- Dolly Kervitsky, RCP, CCRC - National Jewish Medical and Research Center (Denver, CO)
- Kathleen Lindell, Ph.D., RN - Dorothy P. and Richard P. Simmons Center for Interstitial Lung Disease at University of Pittsburgh (Pittsburgh, PA)
- Marvin I. Schwarz, M.D. - University of Colorado Health Sciences Center (Denver, CO)
- Timothy Whelan, M.D. - University of Minnesota Lung Center (Minneapolis, MN)
GENERAL Pulmonary Fibrosis INFORMATION AND EDUCATION
- Ryu JH, Daniels CE, Hartman TE, Yi ES. Diagnosis of interstitial lung diseases. Mayo Clinic Proceedings 2007; 82(8):976-86.
- Amy Olsen, M.D., M.S.P.H. National Jewish Medical and Research Center; Mortality from Pulmonary Fibrosis Increased in the United States from 1993-2002. Am J Respir Crit Care Med Vol 176 pp 277-284 2007
- David M. Center, MD, Boston University, Boston, MA; Taking the "Idio" Out of Idiopathic Pulmonary Fibrosis. Am J Respir Crit Care Med Vol 175 pp 1101-1103 2007 Op-Ed
- Collard, Tino, Noble, Shreve, Michaels, Carlson, Schwarz; Patient experiences with pulmonary fibrosis. Respiratory Medicine: Volume 101, Issue 6, June 2007, Pages 1350-1354
- National Institutes of Health Annual Report, 2006
- Ganesh Raghu, M.D., Derek Weycker, Ph.D., John Edelsberg, M.D., M.P.H., Williamson Z. Bradford, M.D., Ph.D., Gerry Oster, Ph.D.: Incidence and Prevalence of Idiopathic Pulmonary Fibrosis. J Respir Crit Care Med: Published on June 29, 2006 as doi:10.1164/rccm.200602-163OC
- Nirav R. Shah, Paul Noble, Robert M. Jackson, Talmadge E. King, Jr., Steven D. Nathan, Maria Padilla, Ganesh Raghu, Melissa Bruce Rhodes, Marvin Schwarz, Gregory Tino, Robert W. Dubois; A Critical Assessment of Treatment Options for Idiopathic Pulmonary Fibrosis: Sarcoidosis, Vasculitis & Diffuse Lung Diseases: 2005; 22: 167-174
- Fernando J. Martinez, MD; Sharon Safrin, MD; Derek Weycker, PhD; Karen M. Starko, MD; Williamson Z. Bradford, MD, PhD; Talmadge E. King Jr., MD; Kevin R. Flaherty, MD; David A. Schwartz, MD; Paul W. Noble, MD; Ganesh Raghu, MD; The Clinical Course of Patients with Idiopathic Pulmonary Fibrosis. Archives of Internal Medicine June 2005 Vol. 142 Number 12
- Jacobs S, Lindell K. Idiopathic Pulmonary Fibrosis: New guidelines for diagnosing and managing the disease demand a fresh approach to nursing care. Am J Nursing 2003: Vol 103 No 4: 32-41
- Poole PJ, Chacko E, Wood-Baker RW, Cates CJ., Influenza vaccine for patients with chronic obstructive pulmonary disease: Cochrane Database Syst Rev. 2006 Jan 25;(1):CD002733; PMID: 16437444
- American Thoracic Society. Idiopathic pulmonary fibrosis: diagnosis and treatment (international consensus statement). Am J Respir Crit Care Med. 2000;161:646-664.
- Bjoraker JA, Ryu JH, Edwin MK, et al. Prognostic significance of histopathologic subsets in idiopathic pulmonary fibrosis. Am J Respir Crit Care Med. 1998;157:199-203.
- Gay SE, Kazerooni EA, Toews GB, et al. Idiopathic pulmonary fibrosis: predicting response to therapy and survival. Am J Respir Crit Care Med. 1998;157:1063-1072.
- Hubbard R, Johnston I, Britton J. Survival in patients with cryptogenic fibrosing alveolitis: a population-based cohort study. Chest. 1998;113:396-400.
- Johnston ID, Prescott RJ, Chalmers JC, Rudd RM, for the Fibrosing Alveolitis Subcommittee of the Research Committee of the British Thoracic Society. British Thoracic Society study of cryptogenic fibrosing alveolitis: current presentation and initial management. Thorax. 1997;52:38-44.
- Mapel DW, Hunt WC, Utton R, Baumgartner KB, Samet JM, Coultas DB. Idiopathic pulmonary fibrosis: survival in population based and hospital based cohorts. Thorax. 1998;53:469-476.
- Selman M, King TE Jr, Pardo A. Idiopathic pulmonary fibrosis: prevailing and evolving hypotheses about its pathogenesis and implications for therapy. Ann Intern Med. 2001;134:136-151.
- Leslie KO. The pathology of idiopathic pulmonary fibrosis. In: King TE Jr, ed. New Approaches to Managing Idiopathic Pulmonary Fibrosis. New York, NY: American Thoracic Society; 2000:8-13.
- Katzenstein ALA, Myers JL. Idiopathic pulmonary fibrosis: clinical relevance of pathologic classification. Am J Respir Crit Care Med. 1998;157:1301-1315.
- American Thoracic Society. International guidelines for the selection of lung transplant candidates. Am J Respir Crit Care Med. 1998;158:335-339.
- Mason RJ, Schwarz MI, Hunninghake GW, Musson RA. Pharmacological therapy for idiopathic pulmonary fibrosis: past, present, and future. Am J Respir Crit Care Med. 1999;160:1771-1777.
- du Bois RM. Potential future approaches to the treatment of idiopathic pulmonary fibrosis. In: King TE Jr, ed. New Approaches to Managing Idiopathic Pulmonary Fibrosis . New York, NY: American Thoracic Society; 2000:52-57.
LUNG TRANSPLANT
Web Pages:
- United Network for Organ Sharing
- The American College of Chest Physicians
- The American Society of Transplantation
- Duke University Medical Center & Duke Transplant Center
- Inova Fairfax Lung Transplant Program
- University of Pennsylvania Medical Center
- Tampa General Hospital Transplant Center
- The Mayo Clinic
- Second Wind Lung Transplant Association
Literature and Publications:
- The Lung Transplantation Handbook
- The Merck Manual of Diagnosis and Therapy
- The Scientific Registry of Transplant Recipients
- American Thoracic Society. International guidelines for the selection of lung transplant candidates. Am J Respir Crit Care Med. 1998; 158:335-339.
- Benjamin D. Kozower, MD, Bryan F. Meyers, MD, Michael A. Smith, MD, Nilto C. De Oliveira, MD, Stephen D. Cassivi, MD, Tracey J. Guthrie, RN, Honkung Wang, PhD, Beverly J. Ryan, ACNP, K. Robert Shen, MD, Thomas M. Daniel, MD, David R. Jones, MD The impact of the lung allocation score on short-term transplantation outcomes: A multicenter study; J Thorac Cardiovasc Surg 2008;135:166-171
PULMONARY REHABILITATION AND OXYGEN MANAGEMENT
- Nishiyama, et. al.: Effects of Pulmonary Rehabilitation in Patients with IPF; Respirology 2007 1-6
- D. Jastrzebski, A. Gumola, R. Gawlik, J. Kozielski: Dyspnea and Quality of Life in Patients with Pulmonary Fibrosis After Six Weeks of Respiratory Rehabilitation; Journal of Physiology and Pharmacology 2006, 57, Supp 4, 139-148
- Carter, R. & Tiep, B. (2003). Oxygen-Delivery Systems. RT (12), 36-41.
- Hadeli, K.O., Siegel, E.M, Sherrill, D.L., Beck, K.C., Enright, P.L. (2001), Predictors of Oxygen Desaturation during Submaximal Exercise in 8,000 Patients. Chest, 120(1). 88-92.
- Findeisin, M. (2001). Long-Term Oxygen Therapy in the Home. Home Healthcare Nurse, 19(11), 692-699.
- Groves, R.H., Bailey, W.C., Buchalter, S.E. (1991), Long-term Oxygen Conference, Chest, 100, 544-49.
- Petty, T.L. (1998), Supportive Therapy in COPD. Chest, 113(4), 256S-262S.
- Reynolds, H.Y. (1998). Diagnostic and Management Strategies for Diffuse Interstitial Lung Disease. Chest 113(1), 192-202.
- Tarpy, S.P. & Celli, B.R. (1995). Long-Term Oxygen Therapy, NJEM, 333(11), 710-714.
- Wszolek, A. (2002). How My Oxygen System and I Learned to Live Together. Breathe Well, 6(1). 10-13.
- Zielinski J. (2000). Long-term oxygen therapy in conditions other than chronic obstructive pulmonary disease. Respiratory Care. 45(2):172-6.


